Jaxson Bare Updates: Jaxson Update 3/29/11

I'm sorry it has been a few days since my last post. We had a busy weekend with several visitors and then I didn't have internet access in my room at the Ronald McDonald house.

Last Friday Jaxson started having a few more episodes so I only got to hold him once and Chris didn't get to hold him at all. My best friend Lisa come up to visit and was able to see Jaxson for a little bit and then we got to go to dinner together. It was nice to have some girl time.

Saturday was a rough day. We still were not able to hold Jaxson but were able to spend time with him and touch him. They also moved his bed which was very hard on me. We were on a quiet row with only one other baby and they moved him to a row with 4 other babies and a lot more noise. I like to have my quiet time with him so this took some adjusting. Chris' mom and step-dad also came for a visit and were able to see Jaxson for a short time. They took us to lunch and saw Jaxson one more time and then went back home. it was good to be able to spend a little time with them. Madison was here all weekend too and she enjoyed seeing her Nana!

Monday was a good day, it was Jaxson's 3 week birthday and my 32nd birthday. My parents and sister came to take me to lunch and Jaxson was pretty good all day. He then had two good more days.

Skipping ahead to Thursday, Jaxson started having more episodes more frequently. They decided to run blood work and and x-ray again like that did last time. They also decided to stop feedings until they figure out what is wrong. They x-ray showed some bowel distention and his blood work showed he is a little anemic so they did a blood transfusion last night.

This morning when my mom and I got there they had actually taken him off the CPAP and moved him to a nasal cannula. They said he had been doing good since they stopped his food and started an antibiotic so they wanted to try the cannula for 6 hours. They also had removed his PICC line because he did have another infection in his line. The viris he has this time is not as bad as last time and he will probably be on antibiotics for only 7 days this time. Chris got here at about 1 today and we had lunch. Jaxson was still on the cannula when we got there at 2 so they said since he was doing so good they would let him keep going. We got to hold him at 5 for a while then left to get dinner and when we went back at 8 they were just putting the CPAP back on him. They said he had had several episodes in the last few minutes and thought he probably just got tired. They are going to keep going with the 6 hours on and 6 hours off for a couple of days as long as he does okay. He made it 12 hours today which is by far the longest he has gone.

They said tonight they are going to evaluate him tomorrow and possibly restart his feedings then. He has lost a few ounces over the last few days so he needs to start going the other way.

This week has been full of ups and downs. I never know from day to day what he is going to do or how he will feel. Some days like today are good days and some days like yesterday are bad. They are not lying when they tell you in the begining it will be a roller coaster!

Chris' dad and step-mom are coming to visit tomorrow. They haven't seen Jaxson since he was born. It will be good to see them for a bit.